“Ok, don’t move”
It is at that exact moment that I am given the order by the radiologist that a sneeze with the strength of a hurricane comes over me. Oh, god, no. Please don’t make me have to start over. I don’t have to sneeze! It’s just a tickle….
As the whirring of the robotic apparatus hovers over my chest, I focus on every single little thing that could possibly make me have to move. My face mask is too tight. I can’t breathe. I didn’t get my arm in a comfortable position. My shoulder hurts. My pinkie-toe itches. I think I may fart…..
My first week of radiation is complete. Five down. 20 to go. Jeff says I’m 20% done, and that, for some reason, sounds better- it seems do-able.
We arrived in Guadalajara a little over a week ago, and settled in to our temporary home quickly. It’s a super-cute loft in Colonia Americana, a young, hip, cafe and shop-strewn neighborhood that seems convenient to most everything in Mexico’s second-largest city. (Too bad I’m afraid to go into shops or eat anywhere but the furthest open-air table at the least busy time.) We have a private o.patio that is one of the selling-points of this place, so that we don’t have to get dressed and leave the building every time Chance needs to pee or poo.
And although this is a renovated high-rise building, we are on the first floor, so there’ no need to share an elevator with anyone. (Elevators are waaayyyy too close for comfort in these days of Covid-19.) Add to that the fact that there seems to be very few other residents here, and it has, so far, worked out perfectly.
And although radiation seems uber-scary, it has been tolerable so far. I hear the skin burning doesn’t start until the 4th week in, or something like that. I have amassed a small apothecary of lotions, potions creams and oils to slather on my skin during the day and night. After months of research on the best methods to prevent burning, itching, peeling and whatever else, I just bought it all, mixing some of it together to prepare what seems to me the perfect combination. If those don’t work, there’s always cabbage. (I read that cold cabbage leaves can really soothe a hot, uncomfortable chest.) Again, we’ll see.
On another note, remember that pesky-ass wound I told you about in the last post? Well, after well over a month of no relief and countless assaults of said wounds, my wound-care nurse in Puerto Vallarta sent in a sample of tissue to the lab. Turns out it is indeed an infection, and a serious, super-hard to treat one, at that. It’s called Mycobacterium Abscessus. Look it up. It is not nice. In fact, that has become my #1 focus at this time. I guess it’s a good thing that I am in such big city with renowned health care. I am now under the care of an infectologist, and she has ordered more tests in order to nail down the sub-type and begin treatment, which, she admits to me, is hit or miss, and can take up to a year.
I’ll tell you, I am not keen on going to all these clinics, labs and offices in order to get well. I am, however, happy to report that most people here wear masks, and you can’t go into many establishments without one. And for the most part, social distancing is also observed. Last week, in the diagnostic center, a tech in full PE walked out carrying a case that read DANGER! COVID-19 USE ONLY. That was almost the undoing of me, but what do you do?
But I will say, every time I’ve needed an appointment, I’ve never had to wait long, and am usually seen within a day. And I am being forced to use my Espanol, although when being spoken to by a provider whose mouth is behind the protection of both a cloth and plastic face-protector, I’m sure I’ve tested their patience with my repeated phrase of Mande? No intiende. (What did you say? I don’t understand.) I eventually get it. My pantomime skills are exceptional.
So, sorry for this kinda-somber update. I much prefer the upbeat, funny ones, but a lot of you have asked me what’s the latest, and this is just the best way for me to fill you in. I fully expect to get back on the humor-horse without getting bucked off too much. I also fully expect to master the art of stillness without the mind-fucks that go along with being warrned Don’t Move.
As always,
No Pasa Nada (Everything’s going to be alright.)
Hang in there. You are doing great. So sorry about the infection.
So happy to hear mask use compliance in Guadalajara, it is not so here at Lakeside.
Pink hugs
Don’t move, In this case Don’t breathe. You got this!
Thanks, Pam. I;m surprised mask use isn’t as common there. Here, there have been arrests for not using one, so I guess people are getting smarter.
Love you! Sometimes you just have to put your head down and GET THROUGH IT. The infection sounds horrible! Hopefully they will identify and conquer it sooner rather than later! Might the radiation kill it? 😁😁. At least you are in a cool place to heal for now!
No, rads won’t heal the wound. In fact, if it was on the cancer side, I couldn’t have rads at all.
It is always great to hear from you Julie! Que mierda esa infección, I hope they get it under control very, very soon!!!
Your apartment sounds so cool and comfortable.
Guadalajara is quite a charming city . We were there many years ago and had a great time.
20%done with the radiation is good, soon you’ll be reporting the end of this ordeal👍
Un abrazo chica. Y si…, no pasa nada!😘
Mil gracias, amiga.
So good to hear from you Jules! Glad you are happy in your summer place and staying strong!
XXOO, Jenny
We were just talking today about extending our stay. Not looking forward to returning to the heat and humidity of the coast in August.
You are marching on, in true Jules form! One step forward, sometimes two steps back but forward none the less!!! You’re a beast and bringing on your A game! Proud of you! Sounds like they’re taking Covid a lot more seriously than here in TN.
Thanks, Peg. Yes, we have been very impressed with Mexico’s strictness re: Covid. There are even planes overhead on the weekends telling people to stay home!
I’m glad you’re there. It sounds so much more sane and user friendly than in the U.S. love you to the moon!
Thanks, Tra. Yes, I am super-glad to be here, as well. You be careful in that crazy-ass state of Florida!
Oh Jules, I’m glad you are getting great care, can still access your sense of humor and posted this update. I appreciate your authenticity in telling your stories. I’ve wanted to go to Guadalajara for years. Thanks and love to you. N
You may love GDL, but I think you’d love Mexico City more. Although my opinion may be reflective of Covid.
Thanx for the update. I’m happy to hear you’re in Guadalajara as all I’ve read and heard about is that it offers excellent medical care in all forms. I think of you often and will be glad when all of this is behind you. Big hugs and lots of love!
Thanks so much. Yes, the healthcare is good, and drugs are cheap. There must be 4 farmacias on every block! I hope you re having a good summer. I love seeing your pics. Need more!
You are soooooo my hero!! I love you to the moon!! ❤
Barb loved and used Esoterica (spl?) Lotion!
And nobody wears masks here… such idiots!!!!
Thanks, Sal. I think I’m gonna market my concoctions, but I better wait and make sure they work in a couple of weeks!
Julie my friend, if anyone gave out awards for courage and strength, you would get “another” gold medal!! Love and peace to u dear friend!!
Two gold medals! Yes! I assume you are referring to our international choral festival in Rome, that we WON!!??
Thanks for letting us know how you are doing, even when it’s really tough and scary. Every week of treatment is a gain! And there is so much to see at every turn in Guadalajara while you are going to clinics, doctors’ offices, and farmacias. Your fierce spirit is an inspiration. Keep taking good care! Hugs, Pamela (Rey)
Thanks so much for the update. Although, of course, we love your humor, you certainly don’t have to be funny right now.
I looked up your infection. I’m glad that you got it diagnosed and now you can focus on getting rid of it.
I’m assuming you are almost 40% through with the radiation by now. Almost half way there.
Hugs to both you and Jeff.
Thanks for the update with good news and some not so good news too. Wish we could hit the fast forward arrow to be done with treatments. In the meantime, don’t feel that you have to be chirpy and entertaining ALL the time.
hey hey kiddos- hold fast. we love you and send all wishes for continued strength in every minute.